Along with other Down syndrome organizations, LuMind IDSC has adopted the hashtag#T21COVIDon social media (Facebook, Instagram, LinkedIn and Twitter) so that families can easily identify information on COVID-19 and Down syndrome.
Below is a link of relevant information from experts in the Down syndrome community. This listing will be updated as new information is released.
Source: https://www.lumindidsc.org/s/1914/20/interior.aspx?sid=1914&gid=2&pgid=588
DSMIG-USADSMIG-USA Response to Centers for Disease Control Mask Recommendations
Updated -May, 2021
UNTIL WE HAVE MORE DATA, HERE ARE SOME CONSIDERATIONS BASED ON THE CDC GUIDELINES:
You can still wear a mask. It’s never wrong to be more cautious. While masks may not be required, ultimately, wearing masks is a personal decision based on factors such as your comfort with risk, the rate of infection in your community, and the risk of potentially bringing home the virus (especially if someone in the home is at increased risk for severe illness from COVID-19). We still recommend some caution. The data we have so far on COVID-19 infection in people with DS, indicate that those over age 40 and those with certain risk factors are at increased risk for severe illness from COVID-19.
Small gatherings. Per the CDC guidelines, families who have all been fully vaccinated, can hold small outdoor or indoor family gatherings, without wearing masks. These gatherings can include families from multiple households if everyone is fully vaccinated. The risk of infection seems to be quite low in that situation. We recommend caution as those gatherings get larger and the knowledge of the behavior and vaccination status of the participants decreases, particularly for people with DS with risk factors that put them at increased risk for severe illness from COVID-19.
Larger public places. Larger public places include concerts and sporting events as well as crowded stores and other congregate settings, especially those that are indoors. We recommend caution until we know more about the effectiveness of COVID-19 vaccines in people with DS. We recommend considering wearing a mask, performing hand hygiene, and practicing physical distancing as much as possible when in those settings. Others may decide that avoiding those settings altogether is prudent until we know more.
Work, school and activities. Prior to the changes in the CDC’s mask guidelines but after receiving COVID-19 vaccines, quite a few individuals with DS safely went back to work, school, and/or activities. The physical and mental health benefits of returning to work, school, and activities are significant. Even though the CDC has made changes to the mask guidelines, you may want to continue wearing masks and practicing physical distancing depending on factors such as the type of job or activity and the vaccination status of others at the job or activity. Businesses, schools and organizations may also continue to enforce a mask requirement.
Read More: https://www.dsmig-usa.org/covid19
Social Story: How I Got My COVID-19 Shot (source: CDC)
View the social story here: https://www.ndsccenter.org/wp-content/uploads/CDC-SocialStory-COVID-19-shot.pdf
DSMIG-USA - INTELLECTUAL AND DEVELOPMENTAL DISABILITY COVID-19 VACCINATION POSITION STATEMENT
DSMIG-USA - INTELLECTUAL AND DEVELOPMENTAL DISABILITY COVID-19 VACCINATION POSITION STATEMENT
Updated -May, 2021
SUMMARY
We agree with the CDC recommendations that the COVID-19 vaccines are appropriate and recommended for most people. The vaccine may not be appropriate for people with severe allergies.
People with Down syndrome, particularly those over 40 years of age and people less than 40 years of age with risk factors, are more susceptible to complications from COVID-19 infection.
These vaccines specifically and messenger RNA vaccines in general have not been studied in people with Down syndrome or other intellectual disabilities. This is often the case for other vaccines, medications, and supplements.
Since there is a lack of data regarding the benefits and risks of the COVID-19 vaccines for people with Down syndrome and other intellectual disabilities, this recommendation is based on the results of vaccine testing for people without Down syndrome or another intellectual disability. The disproportionate effect of the pandemic on this population was also considered.
Previous vaccines that also trigger the immune system (albeit with different technology) have not had significantly different side effects for people with Down syndrome or other intellectual disabilities.
Studies indicate the vaccine is a safe path to reduce symptomatic COVID-19, save lives, and aid in a more rapid return to the many aspects of our lives that have been altered.
Read More: https://www.dsmig-usa.org/covid19
PODCAST: COVID and Return to School 2021 (with Dr. Andrew Nowalk)
Down Syndrome Center at UPMC Children’s Hospital of Pittsburgh
Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.
Read and Listen here: https://www.chp.edu/our-services/down-syndrome/podcasts/covid-and-return-to-school-2021
Down Syndrome and COVID-19: What You Need to Know
Webinar: "Down Syndrome and COVID-19: What You Need to Know"
Speakers: Dr. Brian Skotko and Dra. Ana Claudia Brandão
Moderator: Claudia Moreira
Free Access: https://www.youtube.com/watch?v=0gtwz-BLtqg
This project was produced by the Mass General Hospital Down Syndrome Program in partnership with the Alana Foundation. The goal of the webinar is to provide factual and evidence-based information for individuals in Brazil with Down syndrome and their families. It is in both English and Portuguese and the content covers updates related to the COVID-19 pandemic, the vaccine, and the impact of the pandemic on people with Down syndrome in the United States and Brazil.
Maryland COVID-19 A-Z Resource Guide
Disability Awareness Toolkit
2018-19 Participation Guidelines and Definitions for Alternate Assessments based on Alternate Academic Achievement Standards
This report provides an updated review of state criteria and guidelines for participation in AAAAAS. We analyze state criteria for participation and factors not to use as the basis of decision making, as well as how states define students with the “most significant cognitive disabilities.” As the resources on state websites have increased, topics covered have expanded to include other information found in the criteria and guidelines: information for parents/guardians, English learner (EL) considerations, and exemptions from participation in the AA-AAAS.
Maryland Guidance for IEP Teams on Participation Decisions for the Alternate Assessments
Advanced Behavior and Learning
Cognitive Connections Executive Function Practice
Maryland School Systems
Maryland ABLE
ABLE Act – Achieving a Better Life Experience Act
The Achieving a Better Life Experience (ABLE) Act gives individuals with disabilities and their families the ability to save for their child’s future just like every other American family, and help people with disabilities live full, productive lives in their communities without losing benefits provided through private insurances, the Medicaid program, the supplemental security income program, the beneficiary’s employment, and other sources.
