Blog
CDSPG occasionally publishes posts from people who are active in the Down syndrome community on all sorts of issues, including public policy, self-advocacy and disability benefits.
Eight hundred attended the Developmental Disability Day in Annapolis on February 22, 2018. This was the largest group to attend DD Day and the largest coalition of any group to ascend Annapolis this year. Included in the group were CDSPG’s Jay and Melissa Silverman.
This year’s National Down Syndrome Congress (NDSC) convention was held on July 21-24 in Orlando, Florida, and I was eager to see what new and emerging trends I would find. The disabilities world is currently experiencing a wave of public awareness, policy changes, and technology and business innovation. A forum like the NDSC convention is the perfect place to feature some of these changes.
31 for 21
In 2016, published a series called 31 for 21, which committed to posting one blog post every day in October: Down Syndrome Awareness Month. Parents, siblings, self-advocates, teachers and other professionals impacted by Down syndrome contributed to the campaign. These are their stories.
Erika and I found out in utero that our daughter Amara had an extra chromosome. The doctor told us that she would have a myriad of health problems and would be a burden to us as her caretakers. As we soon discovered, the bleak picture this doctor painted of Amara’s life turned out to be a complete fallacy.
She read my mind. Again. She is smart in a way that no one can test. But more importantly she is funny, determined, and passionate. And she has the uncanny ability of being able to read my mind. She pays attention to my face more than anyone I know.
Our names are Rich and Dani Gardner. We adopted our daughter Sarah when she was two weeks old. Sarah has Down syndrome. When we made the decision to adopt, we didn’t set out to adopt a child with special needs. We had been trying to have a child for many years, and suffered several miscarriages and failed IVF procedures. It was a very hard time.
This fall, Lily walked into school, on her first day of kindergarten, next to her two brothers, and all of the other children. She said good-bye to me, and off she went with her giant backpack on her back, chatting with her twin brother, not even looking back. Come on, moms need hugs, blown kisses, and SO many pictures, on their kids’ first day of school.
Hi! My name is Charlie, and this Charlie’s World, my photo-blog for the CDSPG 31 for 21 Blog. I am in 12th grade at Towson High School. You will see some of the things that are important to me in these pictures.
If your child has Down syndrome, he or she may be eligible for financial assistance.